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SHARE YOUR NF EVENT PHOTOS

charles-reggie-bob.jpgI set up an Flickr account for Texas NF photos and I would like people to go to Flickr and upload your favorite photos. Or if you don’t know how, you can send them to me. I will upload them for you. Here is the link. http://www.flickr.com/groups/344939@N24/

Maybe you have pictures from camp you want to share. Or maybe a support group. I hope to see your photos soon.

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This entry was posted on Monday, May 21st, 2007 at 1:31 am and is filed under A MESSAGE FROM REGGIE, Links, neurofibromatosis, News, nf, NF1, Photos. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed.

4 Responses to “SHARE YOUR NF EVENT PHOTOS”

  1. Joanne Edmond Says:
    August 26th, 2008 at 11:02 pm

    I have neurofibromatosis and sometimes I just do not know what to do. I really need some one to talk to please if you can help let me know.

  2. Reggie Bibbs Says:
    August 26th, 2008 at 11:31 pm

    Hi Joanne,

    Email me Direct reggie@reggiebibbs.com You can talk to others here on on my chat. I would be happy to help in anyway I can, if you think I can. I look forward to hearing from you.

    Reggie

  3. annette jennings Says:
    November 30th, 2008 at 9:00 am

    hey there
    i happened across your web site, i have NF1 and am now in my 40s just had another load of fibromas burt off with a co2 laser, it works well.

    so i am stuck at home until it heals up and am sooo bored
    would love to hear from you
    take care
    netty
    x

  4. annette jennings Says:
    November 30th, 2008 at 9:01 am

    my email is jenningsnetty@yahoo.co.uk

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I'm delighted to received the out pouring of kindness to me when my story is aired. Thank you for supporting me. I'm happy to hear from everyone who writes. I receive every message, and I will reply to anyone who write me. I'm never to busy to reply. Thank you for taking the time to read this and helping to “Make it a Tremendous Day!”

Reggie Bibbs

Reggie Bibbs and the Just Ask! Foundation operate on a shoestring budget, as many non-profits do. We rely on the charity of others. Others who are moved by Reggie’s calling and touched by his courage.

But the “charity of others” doesn’t always mean cash donations. There are many ways you can help Reggie in his mission to spread awareness of NF and inspire others like himself to start living fuller, more rewarding lives.

To learn more about Reggie’s needs and how you can help, read this personal letter from Reggie.