http://www.reggiebibbs.com/2007/05/25/meet-reggie-bibbs-neurofibromatosis-video/#utm_source=feed&utm_medium=feed&utm_campaign=feed A place to talk, have fun and share. Mon, 15 Mar 2010 04:29:38 +0000 http://wordpress.org/?v=2.9.2 hourly 1 http://www.reggiebibbs.com/2007/05/25/meet-reggie-bibbs-neurofibromatosis-video/comment-page-1/#comment-683 Jae Jin Sun, 02 Dec 2007 08:53:44 +0000 http://reggiebibbs.wordpress.com/2007/05/25/meet-reggie-bibbs-neurofibromatosis-video/#comment-683 Hi reggie, I had come across your video. I am sorry that you had such a difficult time. My son is 6 years old and he also has neurofibromatosis. I was surprised never mind knowing what it was when I saw his cafe au latte spots when he turned 1 years old. I thought that I had done something wrong during my pregnancy at first also. With therapy I am learning to cope with my son's NF. I don't how severe his illness is because he is still young. I am noticing now that he is in first grade that he may have a learning disability associated with it. I quit my dreams aside of becoming physical therapist and decided to go for a teaching carreer to help my son in school. I totur him for hours and reteach what the teacher was teaching in class. I feel very disappointed at times due to feeling helpless. But again I do my very best in coping. I can't discuss my problems to my parents because they are asian and they are most likely to critize me for marrying someone out of my culture. I feel alone and don't have any emotional support from my family. In a way I know what you may had to go through in your life. I am hoping that it wont be as difficult for my son. Thanks for this video. Hi reggie, I had come across your video. I am sorry that you had such a difficult time. My son is 6 years old and he also has neurofibromatosis. I was surprised never mind knowing what it was when I saw his cafe au latte spots when he turned 1 years old. I thought that I had done something wrong during my pregnancy at first also. With therapy I am learning to cope with my son’s NF. I don’t how severe his illness is because he is still young. I am noticing now that he is in first grade that he may have a learning disability associated with it. I quit my dreams aside of becoming physical therapist and decided to go for a teaching carreer to help my son in school. I totur him for hours and reteach what the teacher was teaching in class. I feel very disappointed at times due to feeling helpless. But again I do my very best in coping. I can’t discuss my problems to my parents because they are asian and they are most likely to critize me for marrying someone out of my culture. I feel alone and don’t have any emotional support from my family. In a way I know what you may had to go through in your life. I am hoping that it wont be as difficult for my son. Thanks for this video.

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