THANK YOU, NET 2

Last night I was invited to speak with Net 2 about my website, and neurofibromatosis. Wow! What a tremendous experience it was FOR ME. A great group that was very interested in neurofibromatosis and my campaign. I was able to share what it’s like to live with nf , and how I deal with it. I learned a lot from the group as well as I hope they learned more about nf. I feel blessed that the group received my message. Meeting Net 2 was just what I needed. Maybe if I hang around the group, I can learn more tips about making the perfect site for neurofibromatosis.

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8 Responses to “THANK YOU, NET 2”

  1. Jason McElweenie Says:

    It was great having you last night Reggie, I hope you can come back for more.

  2. Reggie Bibbs Says:

    I had a GREAT! time. Of course I can come back. Just say when. Not the word when, but the date you want me to come back. :) Great group.

  3. Ed Schipul Says:

    Reggie – it was a privilege having you at the Netsquared Houston meeting. I definitely learned a lot about neurofibromatosis and am actively thinking of ways to help more.

    I do still highly recommend you start a group on Flickr on the topic!

    Thanks,

    Ed

  4. Reggie Bibbs Says:

    Thank you Ed. It was a great night. I look forward to any ideas you can add.

    I will start on the NF Group on Flickr.

    Cheers

    Reggie

  5. Jason McElweenie Says:

    Reggie

    I’ve created one for you here http://www.flickr.com/groups/neurofibromatosis/

  6. Kerry Gayle Says:

    Reggie – it was awesome to meet you and your mom and hear your story last night. I hope that you will come back to NetSquared Houston for our next meeting. :)

  7. Katie Says:

    You were great Reggie! I look forward to seeing you at many more Net2 meetups (not to mention Roller Derby bouts, baseball games and every place in between!!!).

  8. Reggie Bibbs Says:

    Looking forward to all the fun. Thank you.

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I'm delighted to received the out pouring of kindness to me when my story is aired. Thank you for supporting me. I'm happy to hear from everyone who writes. I receive every message, and I will reply to anyone who write me. I'm never to busy to reply. Thank you for taking the time to read this and helping to “Make it a Tremendous Day!”

Reggie Bibbs

Reggie Bibbs and the Just Ask! Foundation operate on a shoestring budget, as many non-profits do. We rely on the charity of others. Others who are moved by Reggie’s calling and touched by his courage.

But the “charity of others” doesn’t always mean cash donations. There are many ways you can help Reggie in his mission to spread awareness of NF and inspire others like himself to start living fuller, more rewarding lives.

To learn more about Reggie’s needs and how you can help, read this personal letter from Reggie.