Comments on: Questions I Can’t Answer, Maybe Someone Has The Answer?

By: Reggie Bibbs

Reggie Bibbs — Thu, 10 Jul 2008 00:15:42 +0000

Hi Shelley good to see you here. I hope all is well. Come over to chat.

By: Shelley

Shelley — Thu, 10 Jul 2008 00:10:11 +0000

Hi Everybody

By: John

John — Tue, 08 Jul 2008 19:51:05 +0000

I was not aware of this, I hear or learn something new each day(well, almost) about NF. Hope you continue to come back and join the live chat.
There are some activities coming up, in September there going to be a family camp for NF and families. If you are interested let us know and Reggie or myself can tell you more. This is a great way to meet others with NF.

By: Reggie Bibbs

Reggie Bibbs — Tue, 08 Jul 2008 16:24:24 +0000

Brian thank you for your input. I’m sure this will let Juliet will know she is not alone.

By: Brian

Brian — Tue, 08 Jul 2008 02:36:25 +0000

just wanted to say to Juliet I have NF 2 and also have just recently been diagnosed with ciliac and believe me it no fun NO wheat I want bread bad but I dont know if my ciliac is caused by the NF but I guess it could be because I have NF type 2 and just got diagnosed as ciliac