wee lou makes the decision of her life
Wee Lou “Louise’ Cunningham
On Jul 24, 2008, at 8:39 AM, wee_lou_c wrote:
No unfortunately i had the scan yday and it said the tumor has
grown very large now because of this i would be cut off from the
things i call life also there wud have been a much heavier risk of
me dying straight away today. So i have chosen not to have this but
live slightly longer 2 years at the most and enjoy my family
friends and things i enjoy doing. I thot my outcome would be so
much brighter but yet again i have to keep fighting to enjoy wat i
have left. Dont be sad.
Wee
Wee, am sad but in a way happy that at least the next two years will
have a quality of life that is better than if you had the
operation. I wish I was as brave as you, Louise, to calmly say I have
two years left at the most. I wonder if there is a way to get your
records shipped to M.D. Andersen Cancer Center so our NF doctors here
could take a look at them. Are you flying back now or driving?
Tags: Add new tag, Just Ask!, louise cunningham, neurofibromatosis, reggie bibbs
July 28th, 2008 at 9:34 pm
well just know wee lou we support you 110% all the way and we really enjoy you being here and having you a part of the chat and a part of our lives we are here for you just be strong
your friend always Brian
July 29th, 2008 at 12:28 pm
I send me best thoughts to you Louise. You will always have my support as well as your other friends here. Your friend Reggie
July 29th, 2008 at 10:31 pm
Amen Everybody
July 29th, 2008 at 10:34 pm
HI Everybody
July 30th, 2008 at 9:09 am
hey Shelley whats up
July 30th, 2008 at 4:26 pm
hey thanx guys i didnt actually know there was a blog but i appreciate all your support thanx your friend always wee lou
July 30th, 2008 at 5:28 pm
anytime we are here for you wee lou
July 31st, 2008 at 2:57 am
wee_lou
missed you in chat. I hope all is well and you will email later. It’s 3:00am and I already know I’m crazy. I will check back after afew hours of sleep. All my best to you.
July 31st, 2008 at 11:43 am
Anyone blogging today?
August 2nd, 2008 at 5:27 pm
YO Brian not too much here
August 3rd, 2008 at 9:32 pm
Saturday – had a round of lay-offs. My partner who serve my primary back up got laid off. I was sad about it. They tend to let the good people go, but the one who are so-so, they stay.
August 17th, 2008 at 1:59 am
Sending You My Best Thoughts and Vibes.
August 17th, 2008 at 1:59 am
Sending You My Best Thoughts and Vibes.
October 26th, 2008 at 6:46 pm
Sadly for your friend brain tumors are one of the highest morbidity for cancers but not even half the amount of money dedicated to research such as more well known cancers.
My 10 year old with nf1 died earlier this year from a high grade astrocytoma (brain tumor) of her thalamus. I asked her doctor did her nf lead to this since I knew of two other kids she went to nf camp with in MD who had been diagnosee with cancer. She said the incidence is slighlty higher like 2-3% yet it seems I am constantly meeting or hearing of those with nf1 who are diagnosed with cancer.
She had never had problems with her nf1 before except for some learning problms that were not diagnoseed. She was evalutated by a neuro-psychologist just before starting radiation and they found all the problems I had been descrbing for years.
October 26th, 2008 at 6:46 pm
Sadly for your friend brain tumors are one of the highest morbidity for cancers but not even half the amount of money dedicated to research such as more well known cancers.
My 10 year old with nf1 died earlier this year from a high grade astrocytoma (brain tumor) of her thalamus. I asked her doctor did her nf lead to this since I knew of two other kids she went to nf camp with in MD who had been diagnosee with cancer. She said the incidence is slighlty higher like 2-3% yet it seems I am constantly meeting or hearing of those with nf1 who are diagnosed with cancer.
She had never had problems with her nf1 before except for some learning problms that were not diagnoseed. She was evalutated by a neuro-psychologist just before starting radiation and they found all the problems I had been descrbing for years.
June 16th, 2009 at 10:23 pm
Wee Lou passed away suddenly on Thursday, June 11, 2009 at 4:15pm.
June 26th, 2009 at 3:27 pm
Thanks for the update Lou. I am very sad for the passing of this delightful young woman. You could tell that Louise loved life and her friends and that she valued her quality of life more than quantity. She deserved to have both. She was very courageous.
I really regret that my wife and I had to cancel our trip to Edinburg last Fall. Louise and I had planned to meet for lunch. She will be missed.