«
»

Dr. John M. Slopis Answers Your Questions about Neurofibromatosis, 8-16-12

A while back, we asked Facebook friends of Reggie Bibbs to submit any questions that they may have about neurofibromatosis. We then asked our favorite NF doctor, John M. Slopis, of M.D. Anderson Cancer Center to share some of the answers he had to your questions. The attached video is what he had to say.

 

Share

Tags: , , , , , ,

This entry was posted on Friday, August 17th, 2012 at 11:00 pm and is filed under neurofibromatosis. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed.

6 Responses to “Dr. John M. Slopis Answers Your Questions about Neurofibromatosis, 8-16-12”

  1. adgiant Says:
    August 17th, 2012 at 11:47 pm

    We should all be damn grateful that Dr. Slopis is on our team.

  2. percival b. vasquez Says:
    August 21st, 2012 at 11:08 am

    how cant i prevent it the nf1?

  3. erica little Says:
    August 21st, 2012 at 5:54 pm

    Is there an age when they stop growing are there any clinical studies going on now i want to at least try a cream thanks so much in advance

  4. reggiebibbs Says:
    August 22nd, 2012 at 4:41 pm

    I’m not aware of a cream that can be used for the itching or to stop the growing. There may be a drug study that I don’t know about

  5. reggiebibbs Says:
    August 22nd, 2012 at 4:45 pm

    I hope there is someone that can answer that. I don’t know of a way to stop it.

  6. Cohen Brown Says:
    September 4th, 2012 at 4:48 am

    Dr. John M. Slopis here is a question you may be able to answer , Can a lisch nodule actually turn into an Iris Melanoma and if so are there any reported cases worl wide ?

    Thanking you
    Cohen Brown

7 visitors online now
4 guests, 3 bots, 0 members
Max visitors today: 21 at 06:49 am CDT
This month: 28 at 05-01-2013 08:18 pm CDT
This year: 47 at 01-28-2013 12:12 pm CST
All time: 299 at 11-11-2012 09:50 am CST

I'm delighted to received the out pouring of kindness to me when my story is aired. Thank you for supporting me. I'm happy to hear from everyone who writes. I receive every message, and I will reply to anyone who write me. I'm never to busy to reply. Thank you for taking the time to read this and helping to “Make it a Tremendous Day!”

Reggie Bibbs

Reggie Bibbs and the Just Ask! Foundation operate on a shoestring budget, as many non-profits do. We rely on the charity of others. Others who are moved by Reggie’s calling and touched by his courage.

But the “charity of others” doesn’t always mean cash donations. There are many ways you can help Reggie in his mission to spread awareness of NF and inspire others like himself to start living fuller, more rewarding lives.

To learn more about Reggie’s needs and how you can help, read this personal letter from Reggie.