Neurofibromatosis Cafe » A MESSAGE FROM REGGIE

Archive for the ‘A MESSAGE FROM REGGIE’ Category

Meeting Kevin Nealon in Houston

Sunday, April 1st, 2012

Some friendsand and I went to see Kevin Nealon at the Improv last night. Click on the link, valt then photo. Check out the photos on his website, as well as the photos of my facebook, and flickr page. I met Kevin a fews years ago in California, when visting my friend Scott. That is how I met Kevin. I’ve been friends with Kevin 3 years after that day. Kevin contact me to say he would be in Houston, and he would like for me to come see him. We did, and he really made me happy, as he did the same for my friends.

This is what Kevin did for me. He wore my just ask shirt on stage. He gave me free tickets. He talk to me after the show, Was not in a rush to leave. He posed for photos with me. He collect lots of doodles for National Doodle Day.

Joan Rivers, Jane Leeves, Wendie Malick, Jon Lovitz, Valerie Bertinelli, Garry Shandling, Roseanne Barr, and of course Kevin Nealon. And Kevin gave me this medallion. It was given to him by Brad Paisley. It reads Expect Great Things. Kevin really made me happy, and Im thinkful for what he is doing for all of us that are affect by NF.

Tags: "reggie bibbs" "just ask" neurofibromatosis, acmefish.com, justaskfoundation.org, kevin nealon, reggiebibbs.com, www.reggiebibbs.com
Posted in A MESSAGE FROM REGGIE, Adgiant, Appearances, Awareness, doodle day usa, Facebook, Friend, Friends, Friends of NF, Friends with NF, Just Ask T-shirt, national doodle day, neurofibromatosis, nf | 4 Comments »

Your Just Ask T-Shirts On The Way.

Friday, October 22nd, 2010

Hey Friends, I need a little patience from my friends and new customers… as you may know there’s been a large increase in Shirt sales due to the TLC airing of my visit to Salt Lake City recently. I’m not complaining, and I am very pleased with the increased sales, but now I have to work harder and find more willing friends to take me to the Post Office. I’m Just Asking… for a little understanding in the delay of your shirt delivery.

I am mailing them as quickly as I can get them to the post office. My last shipment went out October 18th. All are mailed at first class parcel. Please allow 7 to 14 days after your order is place.

ps. I have decided to not Iron them, it speeds up the process, and there’s less damage to the shirts. (that was more humor..)

Posted in A MESSAGE FROM REGGIE, Friends, Friends of NF, just ask foundation, Just Ask T-shirt, neurofibromatosis, nf | Comments Off

SUGAR RAY LEONARD IS ON THE BLOG!

Friday, October 16th, 2009

OCT 16, 2009

HEY REGGIE HOW ARE THINGS GOING? I’M IN LONDON HEADING BACK HOME AND I FORGOT TO TELL YOU THAT IT IS MY HONOR TO WEAR MY DEAR FRIEND’S T SHIRT! I LOVE YA MAN BUT YOU NEED TO SEND ME ANOTHER T SHIRT TO SPREAD THE WORD ABOUT YOUR CAUSE CHAMP! ALL THE BEST! SUGAR RAY LEONARD

Guess who is wearing one of my JUST ASK! t-shirts?

You probably already know from the photo you see here. Yes my friend Sugar Ray Leonard. I was so happy when Ray ordered one of my t-shirts. He told me he would be proud to send me a picture of himself wearing my shirt. He kept his word and I have the pictures to prove it. I have known Ray for a long time and he is always supporting my in everything I have done. Imagine someone as famous as him supporting my efforts in NF awareness. He’ll always be the “Champ” in my eyes!

Tags: celebrities, just ask tshirt, Just Ask!, neurofibromatosis, nf, nf awarness, reegie bibbs, sugar ray leonard
Posted in A MESSAGE FROM REGGIE, Awareness, Celebrity, Friend, neurofibromatosis, Reggie\'s Search Machine, T-shirt | 38 Comments »

The Doodle Day Auction has Begun!!!

Sunday, April 26th, 2009

SEE ALL CELEBRITY DOODLES AT DOODLE DAY USA

Reggie Bibbs

Kevin Nealon #1

Kevin Nealon #2

Christopher Atkins #1

Christopher Atkins #2

And here’s the link to the whole auction:

Reggie Bibbs is a highly inspirational man living in Houston, Texas. He was born with neurofibromatosis (NF), a genetic disease which causes him to develop tumors on his body. NF can be a subtle disease, but in Reggie’s case it has left him with a disfigured face. After years of public frustration, he launched a unique one-man campaign to call attention to this disease.

“I have neurofibromatosis. It’s a disorder that causes tumors to grow along my nervous system. In my case, it’s fairly disfiguring. When I would go out in public, people would stare or, worse, walk away. So I came up with an idea for a t-shirt and the rest, as they say, is history.”

With the help of a friend at a local advertising agency, Reggie Bibbs created a t-shirt that would invite people to come up and talk to him about his disorder. “I figured the more they knew about my disease, the more they would understand me.”

“When Reggie called me with the idea for a t-shirt that read, ‘Just Ask’, I literally had tears in my eyes, said long-time friend Lou Congelio, president of STANANDLOU Advertising. The idea was so simple and so powerful that I immediately offered him a position in the company.”

The t-shirt features on the front an abstract outline of Reggie’s face and, on the back, large type that simply says,’JUST ASK!’. Also included on the back is the url for Reggie’s website, www.reggiebibbs.com.

Today, Reggie is also on MySpace and Facebook and has an online store on his website. He’s been interviewed by Wikinews too.

Earlier this year, STANANDLOU and Reggie won 2 Gold ADDY Awards, one silver ADDY, and a Special Judges Award for Public Service Adversiting for their new “Just Ask” ads!

Reggie said, “I am thankful that the work here on the Just Ask campaign is getting noticed. More people will learn about NF as we keep pushing forward. Thank you all for supporting the site with your visits.”

On April 14, 2009, the Just Ask Foundation became exempt from Federal income tax under section 501(c)(3) of the Internal Revenue code.

To learn more about NF and Reggie, visit Reggie’s award-winning website and join him and his friends at the Neurofibromatosis Cafe.

Mari Garcia

Webmaster

Gillian Andersen Website

Tags: doodle day usa, national doodle day
Posted in A MESSAGE FROM REGGIE, doodle day usa, Fundraising, neurofibromatosis | 43 Comments »

A NOTE FROM KEVIN NEALON.

Monday, December 8th, 2008

3090342427_26cb9dd5b3_b 3090342561_eb020396fa_b This weekend I got the shock and surprise of my life! I was going through my emails looking for a phone number when I came across an unopened email dated November 14! It was from my new friend Kevin Nealon, from Saturday Night Live, who I had just met the night before.

I have no idea how I missed this very important email but I guess it was because I was traveling and wasn’t able to check email till I got back home. Anyway, here is the very nice email that Kevin wrote plus the photos he sent.

Hey Reggie,
So great meeting you last night, and your friends! I’m so
flattered that you guys came to my show. Oh, loved your website, too!!
Susan and I loved checking out each category. Great videos and pics,
great coverage on the news stations as well. We’re so impressed with
your courage and your raising awareness of NF. What a difference you
are making! Please keep us updated on the foundation.

Attached are a few pictures of me wearing your shirt. Btw, it
fits me like a glove. I have a new cause now.

Best wishes,
Kevin and Susan

Most of you have seen the photos from my trip to Manhattan Beach California, when I went to visit my friend, Scott. Well, on the visit, Scott suggested we go see Kevin Nealon at the Comedy club. That is where it all happened. After the show Kevin came over to meet me. It was there when I shared with Kevin and his Wife Susan about NF. What a nice couple they both are. So kind and understanding to NF, and the JUST ASK campaign. I’m proud that Kevin is wearing one of my JUST ASK! T-shirts. You never know where you may see one next. Thank you Kevin and Susan for your support. Hope to see you soon.

Posted in A MESSAGE FROM REGGIE, About Me, Appearances, Awareness, Benefit, Celebrity, Favorite Places, Friend, Friends, Friends of NF, Fun, Fundraising, Help, Just Ask!, News, nf, NF1, Photos, T-shirt, Texas NF Foundation | 33 Comments »