Neurofibromatosis Cafe A place to talk, have fun and share.

Some friendsand and I went to see Kevin Nealon at the Improv last night. Click on the link, valt then photo. Check out the photos on his website, as well as the photos of my facebook, and flickr page.  I met Kevin a fews years ago in California, when visting my friend Scott. That is how I met Kevin. I’ve been friends with Kevin 3 years after that day. Kevin contact me to say he would be in Houston, and he would like for me to come see him. We did, and he really made me happy, as he did the same for my friends.

This is what Kevin did for me.  He wore my just ask shirt on stage. He gave me free tickets. He talk to me after the show, Was not in a rush to leave. He posed for photos with me. He collect lots of doodles for National Doodle Day.

Joan Rivers, Jane Leeves, Wendie Malick, Jon Lovitz, Valerie Bertinelli, Garry Shandling, Roseanne Barr, and of course Kevin Nealon.   And Kevin gave me this medallion. It was given to him by Brad Paisley. It reads Expect Great Things.  Kevin really made me happy, and Im thinkful for what he is doing for all of us that are affect by NF.

I went to OfficeMax for office supplies today.  As Lou and I shopped, Deborah asked if we needed help with anything. She helped with finding the ink for my printer.

When it was time to check out, Deborah, was there again with a big smile. I had a chance to mention Just Ask, but didn’t have any cards with me.  Deborah, was nice enough to allow us to take a photo of her.

Thank you Deborah, for your help, and for being so kind! Office Max should be very proud of you!

PHOTOS

12:16am (CST) 5/8/09 Late tired and going to bed. Tomorrow Matt and I will hit the radio waves.
Matt owns a few radio stations and he wants me to go on the radio with him.  I also will be meeting with Gillian Andersons mom tomorrow. She Told Debbi she wanted to take me to lunch. Debbi said everyone wants to meet
you. We are making a difference. I will check back if you write me back. I have a computer in the room. This is me most awesome home I have seen. I will have photos so don’t worry.

9am (CST) 5/8/09  – Reggie just called in and he’s having a great time in Grand Rapids, Michigan. So far this morning, he has been interviewed on four radio stations in the

10:39 am (CST) 5/10/09 – Lunch with Rosemary Anderson. In the photo of Rosemary and me, you will see Grace, Debbie and Matt’s daughter. Rosemary said it was ok to post our picture. She is a wonderful lady.

Citadel Broadcasting network:

WKLQ-FM (Grey & Kluck Show)
WLAV-FM (Kevin Matthews Show)
WTNR-FM (Scrubs in the Morning)
WHTS-FM (The Todd Chance Show)

Reggie’s Interview on WLAV-FM

Reggie’s Video Presentation to Group

Neurofibromatosis Support Group of West Michigan

Gillian Anderson Website

Just talked with Reggie and he had a phenomenal time at the book signing event last night thanks to Greg Gorman. Reggie  said he met a lot of great people and took a lot of photos. He’s  going to try to email me one or two to put on the site until he gets back. PHOTOS

In any event, if you were at the party on Wednesday, please leave a comment so we can live vicariously through Reggie’s amazing life!

Top photo: Me and photographer,

Middle: Me, Christopher Atkins (Blue Lagoon) and Scott Dickson

Lower: Me and Audrey Wells (Director: Under the Tuscan Sun).

This weekend I got the shock and surprise of my life! I was going through my emails looking for a phone number when I came across an unopened email dated November 14! It was from my new friend Kevin Nealon, from Saturday Night Live, who I had just met the night before.

I have no idea how I missed this very important email but I guess it was because I was traveling and wasn’t able to check email till I got back home. Anyway, here is the very nice email that Kevin wrote plus the photos he sent.

Hey Reggie,
So great meeting you last night, and your friends! I’m so
flattered that you guys came to my show. Oh, loved your website, too!!
Susan and I loved checking out each category. Great videos and pics,
great coverage on the news stations as well. We’re so impressed with
your courage and your raising awareness of NF. What a difference you
are making! Please keep us updated on the foundation.

Attached are a few pictures of me wearing your shirt. Btw, it
fits me like a glove. I have a new cause now.

Best wishes,
Kevin and Susan

Most of you have seen the photos from my trip to Manhattan Beach California, when I went to visit my friend, Scott. Well, on the visit, Scott suggested we go see Kevin Nealon at the Comedy club. That is where it all happened. After the show Kevin came over to meet me. It was there when I shared with Kevin and his Wife Susan about NF. What a nice couple they both are. So kind and understanding to NF, and the JUST ASK campaign. I’m proud that Kevin is wearing one of my JUST ASK! T-shirts. You never know where you may see one next. Thank you Kevin and Susan for your support. Hope to see you soon.