Neurofibromatosis Cafe A place to talk, have fun and share.

PHOTOS

12:16am (CST) 5/8/09 Late tired and going to bed. Tomorrow Matt and I will hit the radio waves.
Matt owns a few radio stations and he wants me to go on the radio with him.  I also will be meeting with Gillian Andersons mom tomorrow. She Told Debbi she wanted to take me to lunch. Debbi said everyone wants to meet
you. We are making a difference. I will check back if you write me back. I have a computer in the room. This is me most awesome home I have seen. I will have photos so don’t worry.

9am (CST) 5/8/09  – Reggie just called in and he’s having a great time in Grand Rapids, Michigan. So far this morning, he has been interviewed on four radio stations in the

10:39 am (CST) 5/10/09 – Lunch with Rosemary Anderson. In the photo of Rosemary and me, you will see Grace, Debbie and Matt’s daughter. Rosemary said it was ok to post our picture. She is a wonderful lady.

Citadel Broadcasting network:

WKLQ-FM (Grey & Kluck Show)
WLAV-FM (Kevin Matthews Show)
WTNR-FM (Scrubs in the Morning)
WHTS-FM (The Todd Chance Show)

Reggie’s Interview on WLAV-FM

Reggie’s Video Presentation to Group

Neurofibromatosis Support Group of West Michigan

Gillian Anderson Website

Just talked with Reggie and he had a phenomenal time at the book signing event last night thanks to Greg Gorman. Reggie  said he met a lot of great people and took a lot of photos. He’s  going to try to email me one or two to put on the site until he gets back. PHOTOS

In any event, if you were at the party on Wednesday, please leave a comment so we can live vicariously through Reggie’s amazing life!

Top photo: Me and photographer,

Middle: Me, Christopher Atkins (Blue Lagoon) and Scott Dickson

Lower: Me and Audrey Wells (Director: Under the Tuscan Sun).

This weekend I got the shock and surprise of my life! I was going through my emails looking for a phone number when I came across an unopened email dated November 14! It was from my new friend Kevin Nealon, from Saturday Night Live, who I had just met the night before.

I have no idea how I missed this very important email but I guess it was because I was traveling and wasn’t able to check email till I got back home. Anyway, here is the very nice email that Kevin wrote plus the photos he sent.

Hey Reggie,
So great meeting you last night, and your friends! I’m so
flattered that you guys came to my show. Oh, loved your website, too!!
Susan and I loved checking out each category. Great videos and pics,
great coverage on the news stations as well. We’re so impressed with
your courage and your raising awareness of NF. What a difference you
are making! Please keep us updated on the foundation.

Attached are a few pictures of me wearing your shirt. Btw, it
fits me like a glove. I have a new cause now.

Best wishes,
Kevin and Susan

Most of you have seen the photos from my trip to Manhattan Beach California, when I went to visit my friend, Scott. Well, on the visit, Scott suggested we go see Kevin Nealon at the Comedy club. That is where it all happened. After the show Kevin came over to meet me. It was there when I shared with Kevin and his Wife Susan about NF. What a nice couple they both are. So kind and understanding to NF, and the JUST ASK campaign. I’m proud that Kevin is wearing one of my JUST ASK! T-shirts. You never know where you may see one next. Thank you Kevin and Susan for your support. Hope to see you soon.

Tonight was another great night at the Houston Livestock Show and Rodeo!

I started out with the live stock show and all of the other fun things. Oh, my God! Did I enjoy the FOOD. Everything was to die for. Deep fried Oreos, steak burgers, foot-long sausage sandwiches, giant cinnamon rolls with lots of icing. But don’t take my word for it, check out the photos for yourself.

Click here to see photos from today!

I went to the Rodeo to see Martina McBride. She was great and the music was terrific! She really sang her heart out. She sang all of her best songs and the crowd loved it. Of course, so did I. Martina loves Houston and she looks forward to her show here every year.

I know why she loves Houston. I feel it every time I go out. So many people here have been so kind to me. I’m thankful to be in a great city like Houston. It made me feel so good when people I never met came up to be today and spoke kind words to me. You will see them in my photos. People like that are heroes to me!

I spoke with Mari Garcia administrator of Gillian Anderson’s Official Web Site, I was asked sometime ago to help out and to contribute a doodle for NF, Inc’s Second National Doodle Day Auction. I was happy to post a blog and do what I can to be of help. Please check out the links and see your favorite Actors and actress and others who have support the fight against NF.

The auction will start on May 8 on eBay. So far there are two pages and more doodles will be added as they come in. Be sure and blog your favorite doodle.

NF, Inc. is raising money for neurofibromatosis through their annual National Doodle Day! As part of NF Awareness month, celebrity doodles will be available for auction on eBay.

These doodles have a very important aim: the funds they raise will benefit NF, Inc., an organization dedicated to providing support to individuals and families affected by neurofibromatosis (NF).

Neurofibromatosis is a genetic disorder that affects one in every 2,500 births. NF is more common than Cystic Fibrosis, Muscular Dystrophy and Huntington’s Disease combined. Funds raised from the Doodle Day auction will go to support education, advocacy, coalitions, and research for treatments and a cure.

To learn more about NF, please visit www.nfinc.org.
For more information about National Doodle Day, contact email doodleday@nfinc.org

View celebrity doodles

I’m proud to present to you the Reggie Bibbs online Just Ask! Store. We are now open. There are a wide range of new products available.

We can increase awareness of Neurofibromatosis on a wider range, at the same time raise money for neurofibromatosis.

All proceeds will go toward research and awareness. I know you will find a product that will meet your fashion needs. My original shirts can be ordered from my site. The new link will take you to the store.

Happy Holidays and Happy Shopping!

Just a reminder to you all that are supporting the blog. Don’t forget to do your Christmas Shopping or any other holiday shopping here on my site. I have a new shipment of Just Ask t-shirts that you can order for friends and family.

Imagine how cool you and your entire family would look sitting in front of a blazing fireplace, drinking a hot, steaming cup of Starbucks coffee or Hot Chocolate, wearing a comfy, cozy Just Ask! T-Shirt

Heck, you’d look just like Sugar Ray Leonard, Greg Gorman, and Arthur Meyerson and other really cool people!!!. Oh, and of course, ME ME ME! Order your holiday Just Ask! T-shirts today and I guarantee delivery before Christmas!!! I’ll make Lou deliver them! : > )

CLICK HERE AND THEN CLICK ON STORE!!! IT’S EASY, EVEN LOU CAN DO IT!!!

Hello Reggie,

My name is Eleanor and my daughter was just diagnosed with NF. We noticed her beautiful little “birthmarks” when she was born and her daddy took such pride because his little girl had the same marks as he did in almost the exact places.

She later developed freckles on her armpits and I would tease her that the freckle fairy must have slipped off her nose and landed there instead dropping her bag full of freckles.

Just this week during a check up for a mole on my son, the dermatologist noticed the cafe au lait spots and turned his attention to my daughter. You can imagine my surprise. These were after all JUST freckles. Unfortunately, the doctor did not break the news very well. I was reeling.

It has been 4 days since we got the news and I have had every emotion imaginable. Every fear…how will she be treated? will people reject her?…how will she deal with it? Is this painful? no grandchildren? (more…)

Hello my friends hello. Hum. That was in a song wasn’t it? I loved the song. Yesterday was the best day in a very long time with views on this topic. I’m very happy with the comments and support from all of you. Yes you have encouraged me to Just do it!

Well it’s a start and I have pictures to prove it.

You are a part of this success. Lets keep the stats up. Let me know what you think about the photos. You will see me out and about in shorts around Houston. I have to remember We have a lot of great people here in Houston, have supported me many times before.

I received a wonderful letter from my friend from years back. At the time I met Mike Moncrief, he was Senator Mike Moncrief for the State of Texas. And now he is Mayor Mike Moncrief of Fort Worth. He and his wife Rosie have been very supportive in everything I have been involved in. You will see that in the photos in my picture section on Flickr. Mike and Rosie also wear one of my JUST ASK t-shirts. I’m honored to call them my friends!

Here is the email that he sent me today:

“Hey Reggie, I just visited your website and i was most impressed. The ongoing
challenge of raising awareness of NF and search for a cure is made easier by your efforts. By the way, I wear my Tshirt every chance I get and have had numerous folk come up to me and ask about it. Keep up the great work and you are more than welcome to post this email on your blog.

Your Bud,
Mayor Mike