Neurofibromatosis Cafe

“Daddy, where do Just Ask T-shirts come from?”

adgiant — Thu, 02 Sep 2010 13:30:58 +0000

They come from TNT Shirts! I went down to TNT today to check on the Just Ask! t-shirts. They were just starting to print the pink ones so I asked if I could shoot it on video. They said, “Sure.” So I did. Here it is. Video. If you’ve ever wondered how they print t-shirts, watch this video. Here are the photos. Photos

Thank you Peter and Brian at TNT!

TNT T-Shirts

“Surgical Strategies for Neurofibromatosis” – Dr. Ian E. McCutcheon, M.D. Anderson Cancer Center, 8/7/10

adgiant — Fri, 27 Aug 2010 16:31:36 +0000

Dr. McCutcheon spoke at the NF Symposium M.D. Anderson Cancer Center, 8/7/10, on the topic “Surgical Strategies for Neurofibromatosis.” Event sponsored by the Texas NF Foundation.

WATCH VIDEO

Order your brand-spankin’ new “Just Ask” t-shirts here!

adgiant — Fri, 20 Aug 2010 23:18:52 +0000

HELP REGGIE RAISE AWARENESS OF NF!!!

If you’d like to order your very own, “official” JUST ASK! t-shirt, you’re at the right place!

T-shirts are available in kid’s medium and adult small, medium, large, X-large, 2X and 3X. The men’s shirt is available in yellow, and the ladies shirt is available in blue, pink. or plum, with a fitted waist and a v-neck. Cost is just $15 per shirt + $5.00 shipping / handling with all proceeds going toward increasing awareness of neurofibromatosis.

Choose from men or women’s shirts below, and thanks for supporting Just Ask! ORDER HERE!

My 46th Birthday Bash at Saltgrass Steak House, 8/17/10!

reggiebibbs — Wed, 18 Aug 2010 13:56:08 +0000

This is a simple blog to write today. I can’t say how thankful I feel. It was a very busy morning, but in a good way. I was flooded with over 200 birthday wishes on Facebook. Just as my friend said, “You are 46 now, and you will be 47 when you finish replying to everyone who wished you Happy Birthday.”

Thank you, Lou, and everyone else who made my birthday the best one ever! Dinner with good friends, and at one of the friendliest places in Houston, the Saltgrass Steak House in Meyerland just off 610. The staff did a tremendous job! Special thanks to Michael, our server, who kept Lou’s beer cold and the food coming!!!

I had the surprise of my life when we walked in the door at Saltgrass. Standing in front of me was an old friend from the early days of the Texas NF Foundation, Gary Stankowski!!!! It was so nice seeing him and his very pretty wife, Susie.

Those that didn’t have dinner with me sent a most welcome happy birthday text. But not until I was born, 9:45pm I thought it was funny and true.

Enjoy the photos. I didn’t get drunk nor did I drink so there are no embarrassing photos. Well, except for those with Lou and Everette!

PHOTOS

Steak Nite at PJ’s, 8/12/10

adgiant — Fri, 13 Aug 2010 03:26:27 +0000

Tonight, Matt, Geo and I went to PJ’s for Steak Nite. We wanted Reggie to go but he wasn’t feeling up to it. It’s been a while since the gang has been here but we decided to start the tradition back up again. Hopefully, next tine Willian, John Person, John Aucoin, and John Cassius will be able to join us. It was great seeing PJ and some of the regulars although missing were some of our favorites: Dawn, Ovie, Jenny, Erica and the rest of the dudes. But hey, what the hell, you gotta start somewhere! Next Thursday will be even better! We’ll drag Reggie here if we have to!

NF Symposium, M.D. Anderson Cancer Center, 8/7/10

reggiebibbs — Sun, 08 Aug 2010 01:33:00 +0000

Today was a great day at M.D. Anderson Cancer Center. The Texas NF Foundation put on a symposium for NF patients detailing the latest treatment options, research, genetic testing, clinical trials, learning disabilities, and educational partnerships regarding neurofibromatosis. We had incredible presenters: Dr. John Slopis, Dr. Bartlett Moore, Dr. Ian McCutcheon, Dr. Shweta Dhar, Dr. Laura Klesse and Brenda Nelson.

Drs. John Slopis and Bart Moore, Reggie Bibbs and Dr. Ian McCutcheon of M.D. Anderson Cancer Center

PHOTOS

Drew Nelson – Singer, songwriter and friend to NF’ers!

reggiebibbs — Sun, 01 Aug 2010 20:49:50 +0000

When I was in Grand Rapids a few months ago, I met Drew Nelson. I listened to him play, and I think he is terrific! I was able to say hello and speak to him for just a short time. We just became friends on Facebook. He had a show last night and even though I wasn’t there, I asked him to sing one on my favorite songs of his, “Molly’s Home” from his new album, “Dusty Road to Beulah Land.” Here is the message he sent to me after the show,

“Hey Reggie.. I played ‘Molly’s Home’ tonight .. Closed my eyes and pictured you. Hope you are doing well.” – Drew

What a nice guy. When he is in Houston, I for sure will go see him play. He has supported an NF event in Grand Rapids so I’m going to support him with his gift of music. I hope my friends will support him as well!

Drew’s Facebook Page

Lou tries out his new video camera.

adgiant — Fri, 23 Jul 2010 16:04:36 +0000

Just Ask Foundation Honored at Houston Roller Derby Tonight!

adgiant — Sun, 18 Jul 2010 05:37:21 +0000

The future stars of the Houston Roller Derby, 2011!

Thank you, girls, for putting up with me tonight and being so nice to Reggie. If you are a sampling of the talent coming up in the roller derby system, Houston Roller Derby will be in great hands in the years to come! Please leave your names in the comment area so we can tag your names. Also, Please friend Reggie Bibbs on Facebook. We will be posting the photos there as well and we’d love to tag your photos!

To all the wonderful people we met tonight, please leave a comment, tell us your name, friend Reggie Bibbs on Facebook and let Reggie know just how important what he is doing is. It was so heartening tonight to have people come up to Reggie and introduce themselves and shake his hand. Reggie is definitely an inspiration to us all!

PHOTOS Also, Reggie and I got a big surprise when Todd Packard came up to us before the matches started and handed us two bagfuls of “Just Ask!” pins. (See inset photo) He printed two designs, one with the face outline and another with the script”Just Ask” and the url. We were both touched by the sincerity of Todd and his generosity, Thank you, Todd! What a great idea!!!

Todd Packard

Raven Knockahoe

The Discovery Channel Documentary Crew in “Just Ask!” T-shirts!

adgiant — Thu, 15 Jul 2010 23:11:21 +0000

We wanted to send
a big thankyou from the team!
Pic
attached!
This is the team
below-Tom Lindley on the left, then Tom Peppiatt who you know, Hereward
Pelling our Series Producer , Peter Crystal who you also
know,
Then below
are Caroline Meyer our coordinator and myself the Production Manager Donna!