Neurofibromatosis Cafe A place to talk, have fun and share.

(Double-click on photo above for the names of our Just Ask! ambassadors)

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See all the photos on Flickr

If you were at Camp for All this weekend, please leave a comment below and your full name so that we can tag your name to the photos on Facebook and Flickr. Also, a brief description of yourself or where you are in one of the photos. Or, better yet, go to Facebook or Flickr photos and tag yourself or leave a comment saying that you are in that photo so we can get to know each other better and connect faces with names.

Unfortunately, we met so many new people this weekend that we can’t remember all of the names. Either that or we were too drunk! Just kidding….

Reggie Bibbs.

This year Camp For All, was  more then words can discribe.    Thank goodness for the rain, yes a rainy camp weekend.  We had a great time.  No there was no mud wrestling, all though all of the ellemants was there to have a few matches. We discided to meet our new commers to camp this year.  It was nice meeting friends that I talk to on  FaceBook,  and finnally meeting them at camp. Also It was nice meting our friends who we see every year was a blast as well.  Plese new commers join in the blog and talk about camp.   Remember to tag your photos on facebook so everyone will know who you are. Maybe we can encourage more to join us next year.  Thanks for making Camp a time to remember. And, thank you Texas NF Foundation for making this all possible!!!

Today, Lou and I had a meeting about the blog, website and future plans. Everything went Terrific!

While at STANANDLOU, we took a few pictures after the meeting. I’m looking forward to the exciting things we have planned for the website. Of course, I came up with most of the ideas so don’t give Lou all the credit.

Anyway, I will be heavily involved helping the Texas Neurofibromatosis Foundation with their search for a cure for NF. I want to help with their events for 2008. I know I will go to the NF camp this summer.

If you are a regular on my blog, it might be a good idea to start spreading the word about the blog to your friends that have NF. The blog is a good place to find out about upcoming events and also just to share information and have fun, too!

I think people have fun here even if they don’t have NF. Just ask Shelley, Arthur and Lou. Never mind, don’t ask Lou!!!

I wanted to let you know we are home from a TERRIFIC weekend at a
wonderful place called CAMP FOR ALL, In Burton Texas. It is an amazing place for persons with disabilities. I would give this place a five star rating. A big thank you to the kind staff. It was my first time and will NOT be my last time. Looking forward to next year. I also want to thank the Texas Neurofibromatosis Foundation for Helping my family to be a part in the Fun. Let spread the word and try to have more campers next year. I hope you will join us next year. You will love it. PHOTOS

Hey guys and gals Just want to let you know where I will be this weekend. Burton Texas for the annual NF Camp. It’s been years since my last NF camp, and I’m happy to have this chance to go this year. I will get to see a lot of my friends from the other times I have gone. If you are not able to attend, don’t worry I plan to take lots of photos that you can see here and on my photo page. And all of you that can’t make it this year I hope you will plan to come next year. So lets talk camp today.

NF FAMILY CAMP, CAMP FOR ALL
SEPT 7 – 9, 2007, Burton, TX

Texas NF Foundation is thrilled to bring you the 16th Annual NF Family Camp. The purpose of this camp is for families affected by NF to connect with one another in a place where our commonality is NF. It will be a time to learn and laugh as we make meaningful relationships with new friends and grow closer to our own families. (more…)