A while back, we asked Facebook friends of Reggie Bibbs to submit any questions that they may have about neurofibromatosis. We then asked our favorite NF doctor, John M. Slopis, of M.D. Anderson Cancer Center to share some of the answers he had to your questions. The attached video is what he had to say.
“Race the Lake for NF Research 10K”Please join us for the 10th annual Race the Lake for Research 10K to fight neurofibromatosis! The race begins and ends at our family marina: Kitto’s marina in beautiful Pillar Point (just outside of Dexter, NY).
The 10K is a nice loop that finishes along the lake. Afterward, relax and enjoy the marina festivities: a pancake breakfast (made to order!), swimming, and relishing in the fact that you made a difference + had a great time-all before NOON!!!!
For more information you can e-mail me @:nfracer@twcny.rr.com
info: 315-639-6043, Diantha Kitto Velasquez.
The Story Behind “Just Ask!
Reggie Bibbs talks to the Grand Rapids NF Foundation – Part 1
“Waiting for my real life to begin” Video – Part 2
“Waiting for my real life to begin” - LIVE Version recorded at the Dosey Do in The Woodlands . Performed by Colin Hay of “Men at Work” and dedicated to Reggie Bibbs.
“Beautiful” Video – Christina Aquilera
NF Symposium at MD Anderson Cancer Center
“Neurofibromatosis Type 1: Update 2010″ - Dr. John M. Slopis, M.D. Anderson Cancer Center, Texas NF Symposium, 8/7/10
“Panel discussion on neurofibromatosis with NF patients.” - Reggie Bibbs, Andy Pagoda and Dr. John Slopis, Texas NF Symposium, 8/7/10
“Why do so many children with NF struggle in school and what can be done about it.” Dr. Bartlett Moore, M.D. Anderson Cancer Center, Texas NF Symposium, 8/7/10
NF Doctor Panel Q&A, Texas NF Symposium, M.D. Anderson Cancer Center, 8-7-10
“Surgical Strategies for Neurofibromatosis” - Dr. Ian E. McCutcheon, M.D. Anderson Cancer Center, 8/7/10
“2010 Update on Genetic Testing in NF1 and NF2.” - Dr. Shweta Dhar, Texas NF Symposium on Neurofibromatosis, M.D. Anderson Cancer Center, 8/7/10
“Current Therapies for NF1″ – Dr. Laura Kleese, Pediatric Oncologist, Texas NF Symposium, M.D. Anderson Cancer Center, 8-7-10
“2010 Update on Genetic Testing in NF1 and NF2.” - Dr. Shweta Dhar, Texas NF Symposium on Neurofibromatosis, M.D. Anderson Cancer Center, 8/7/10
Related Videos
My Brand New Face - Maurice Simpson & Reggie Bibbs, Discovery Channel Documentary
1994 NF PSA - Reggie Bibbs
Neurofibromatosis Interview with Reggie Bibbs (FOX NEWS) Damali Keith, 2007
Debra Duncan Show - Reggie Bibbs & Neurofibromatosis” June 8, 1999
Wikipedia - Reggie Bibbs was interviewed on Nov 23, 2007 for Wikinews describing what it is like living with neurofibromatosis and what he has done via his website, blog and other resources to increase awareness of NF.
ABC News Report on Neurofibromatosis and Reggie Bibbs - Christy Myers reports on one man’s crusade to raise awareness of neurofibromatosis through his website, blog, photo and video portals on the internet, and attending community events in Houston
Texas NF Foundation 15th Anniversary Video (1995) Part 1 of 2 “NF XV – In Search Of The Cure” – 26 minutes
Texas NF Foundation 15th Anniversary Video (1995) Part 2 of 2 “NF XV – In Search Of The Cure” – 23 minutes
Texas NF Foundation 30th Anniversary Video, 2010
Dr. Bartlett Moore, Clinical Neuropsychologist, Texas NF Symposium, M.D. Anderson Cancer Center, 8/7/10
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Degree-Granting Education |
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| 1985 | University of Houston, Houston, TX, PHD, Clinical Neuropsychology |
Postgraduate Training |
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| 1/1986-1/1987 | Post-doctoral Research Associate Division of Neurosurgery, University of Texas Medical Branch, Galveston, TX (more…) |
THE SHIRTS SAY YOU CARE!!!
If you'd like to order your very own, "official" JUST ASK! t-shirt, just CLICK HERE!! T-shirts are available in adult small, medium, large, X-large, 2X-large and 3X-large. Cost is just $15 per shirt with all proceeds going toward increasing awareness of neurofibromatosis.
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