Posts Tagged ‘Lou congelio’
Thought things couldn’t get any better. I found out yesterday things can always get better, Even though you are happy with the way things are going for you now. I Meet a lot of nice people in Austin. Our Austin friends are learning about neurofibromatosis and showing compassion about all who are affected by NF. Shouldn’t surprise me. I always walk away feeling great, as I know the new friends I met feel the same. A big thank you to all who took time to take photos with me! You are all very special to me!
While Ed was in town this Thanksgiving holiday, he wanted to get some good old Texas Bar-B-Q. Lou took us to Goode Company where we had a great lunch. Ed wanted to know everything about JUST ASK, and how things are going at my office. It was great talking to Ed and catching up on things since I saw him last.
I hope you enjoy the photo. He now has a Just Ask! t-shirt and will be talking aboutf Just Ask and neurofibromatosis when he gets back to Pennsylvania. Thanks ED for the lunch. See you in D.C.!
Today, Lou and I had a meeting about the blog, website and future plans. Everything went Terrific!
While at STANANDLOU, we took a few pictures after the meeting. I’m looking forward to the exciting things we have planned for the website. Of course, I came up with most of the ideas so don’t give Lou all the credit.
Anyway, I will be heavily involved helping the Texas Neurofibromatosis Foundation with their search for a cure for NF. I want to help with their events for 2008. I know I will go to the NF camp this summer.
If you are a regular on my blog, it might be a good idea to start spreading the word about the blog to your friends that have NF. The blog is a good place to find out about upcoming events and also just to share information and have fun, too!
I think people have fun here even if they don’t have NF. Just ask Shelley, Arthur and Lou. Never mind, don’t ask Lou!!!