Posts Tagged ‘neurofibromatosis cafe’

119,486 Visitors from 173 Countries!!!

Thursday, September 8th, 2011

Over the past three years, there have been at least 119,486 visitors from at least 173 countries to reggiebibbs.com!!!
Click here to see a map.

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Reggie’s First Ever PSA for Neurofibromatosis, 1989!

Wednesday, February 16th, 2011

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The latest NF videos from MD Anderson Cancer Center and Reggie Bibbs

Monday, February 7th, 2011

The Story Behind “Just Ask!
Reggie Bibbs talks to the Grand Rapids NF Foundation – Part 1

“Waiting for my real life to begin” Video – Part 2

“Waiting for my real life to begin” - LIVE Version recorded at the Dosey Do in The Woodlands . Performed by Colin Hay of “Men at Work” and dedicated to Reggie Bibbs.

“Beautiful” Video – Christina Aquilera

NF Symposium at MD Anderson Cancer Center

“Neurofibromatosis Type 1: Update 2010″ -  Dr. John M. Slopis, M.D. Anderson Cancer Center, Texas NF Symposium, 8/7/10

“Panel discussion on neurofibromatosis with NF patients.” -  Reggie Bibbs, Andy Pagoda and Dr. John Slopis, Texas NF Symposium, 8/7/10

“Why do so many children with NF struggle in school and what can be done about it.” Dr. Bartlett Moore, M.D. Anderson Cancer Center, Texas NF Symposium, 8/7/10

NF Doctor Panel Q&A, Texas NF Symposium, M.D. Anderson Cancer Center, 8-7-10

“Surgical Strategies for Neurofibromatosis” - Dr. Ian E. McCutcheon, M.D. Anderson Cancer Center, 8/7/10

“2010 Update on Genetic Testing in NF1 and NF2.” - Dr. Shweta Dhar, Texas NF Symposium on Neurofibromatosis, M.D. Anderson Cancer Center, 8/7/10

“Current Therapies for NF1″ – Dr. Laura Kleese, Pediatric Oncologist, Texas NF Symposium, M.D. Anderson Cancer Center, 8-7-10

“2010 Update on Genetic Testing in NF1 and NF2.” - Dr. Shweta Dhar, Texas NF Symposium on Neurofibromatosis, M.D. Anderson Cancer Center, 8/7/10

Related Videos

Meet Reggie Bibbs

My Brand New Face - Maurice Simpson & Reggie Bibbs, Discovery Channel Documentary

1994 NF PSA - Reggie Bibbs

Neurofibromatosis Interview with Reggie Bibbs (FOX NEWS) Damali Keith, 2007

Debra Duncan Show - Reggie Bibbs & Neurofibromatosis” June 8, 1999

Wikipedia - Reggie Bibbs was interviewed on Nov 23, 2007 for Wikinews describing what it is like living with neurofibromatosis and what he has done via his website, blog and other resources to increase awareness of NF.

ABC News Report on Neurofibromatosis and Reggie Bibbs - Christy Myers reports on one man’s crusade to raise awareness of neurofibromatosis through his website, blog, photo and video portals on the internet, and attending community events in Houston

Texas NF Foundation 15th Anniversary Video (1995) Part 1 of 2 “NF XV – In Search Of The Cure”  – 26 minutes
Texas NF Foundation 15th Anniversary Video (1995) Part 2 of 2 “NF XV – In Search Of The Cure”  – 23 minutes

Texas NF Foundation 30th Anniversary Video, 2010

Music Nite with Reggie Bibbs

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NF Symposium, M.D. Anderson Cancer Center, 8/7/10

Saturday, August 7th, 2010

Today was a great day at M.D. Anderson Cancer Center. The Texas NF Foundation put on a symposium for NF patients detailing the latest treatment options, research, genetic testing, clinical trials, learning disabilities, and educational partnerships regarding neurofibromatosis. We had incredible presenters: Dr. John Slopis, Dr. Bartlett Moore, Dr. Ian McCutcheon, Dr. Shweta Dhar, Dr. Laura Klesse and Brenda Nelson.

Drs. John Slopis and Bart Moore, Reggie Bibbs and Dr. Ian McCutcheon of M.D. Anderson Cancer Center

PHOTOS

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Photos from Reggie’s Trip to Utah

Wednesday, June 16th, 2010
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Jill Lyons Cannon and Family at Airport

My trip to Salt Lake City was the best ever. I met Maurice, his wife and kids. Brenda, Maurice’s mom is an amazing lady. I felt so welcome when I walked in the house. The kids and family members made me feel at home. Maurice and I really had a great talk, fun conversation. Amazing how we both have the same thoughts about  we live our lives.  I know I was bless by this family. Found new friends,  that I will always keep in contact with.

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I'm delighted to received the out pouring of kindness to me when my story is aired. Thank you for supporting me. I'm happy to hear from everyone who writes. I receive every message, and I will reply to anyone who write me. I'm never to busy to reply. Thank you for taking the time to read this and helping to “Make it a Tremendous Day!”

Reggie Bibbs

Reggie Bibbs and the Just Ask! Foundation operate on a shoestring budget, as many non-profits do. We rely on the charity of others. Others who are moved by Reggie’s calling and touched by his courage.

But the “charity of others” doesn’t always mean cash donations. There are many ways you can help Reggie in his mission to spread awareness of NF and inspire others like himself to start living fuller, more rewarding lives.

To learn more about Reggie’s needs and how you can help, read this personal letter from Reggie.