Neurofibromatosis Cafe

Posts Tagged ‘nf inc’

Leaving on a jet plane to Vancouver, British Columbia

Thursday, April 8th, 2010

Today, Steve Bass (PHOTO ON LEFT) and I will be traveling to British Columbia, for the NF Canada and BCNF symposium. Steve Bass is the owner of srbservices. and someone who has been a very good friend, is taking time from is business to help me with my travels. This a tremendous help to me when Steve can juggle things around to make things easy for me. All of this at his own expense, to help a friend, and the Just Ask Campaign.

The Symposium promises to be exciting. Looking forward to seeing my good friend Dr. Riccardi! Yes, he will be there, and I will have a tough act to follow. I have to speak after Dr.Riccardi (PHOTO TO THE RIGHT). Not too worried about it. He refers to me as the secret weapon for nf. Wow, that means a lot coming from someone like Dr. Riccardi. Stay tuned as we hope to send photos as we get them.

I need to bring Dr. Riccardi a new gold Just Ask! shirt. It would look great with his tan! I mean just look how good it looks on me!!!

Tags: "reggie bibbs" "just ask" neurofibromatosis, Just Ask!, nf inc, steve bass
Posted in Awareness, Facebook, just ask foundation, Just Ask!, T-shirt | 6 Comments »

ONLY THREE DAYS LEFT TO BID ON YOUR FAVORITE DOODLE BENEFITTING NF!!!

Wednesday, May 14th, 2008

Hi Reggie and Lou,

NF, Inc. has updated the front page of their website to promote the auction with the autographed photo of Dr. Riccardi wearing your Just Ask t-shirt! They have also included a link to your website. By the way, the auction is proceeding VERY nicely. Thanks SOOO much again for ALL your fantastic help and support!

Mari

Tags: doodle day usa, dr. riccardi, Just Ask!, neurofibromatosis, nf inc, reggie bibbs
Posted in neurofibromatosis | 75 Comments »

Celebrities, artists, designers and friends in middle of doodling frenzy for neurofibromatosis!!!

Monday, March 17th, 2008

Lou and I are in the middle of what I thought would be a very difficult task: asking celebrities, artists and friends to draw a doodle for National Doodle Day benefiting NF!

Well, I’m happy to say it was very easy thanks to some very special friends! With the help of some special people who want a cure for NF as much as I do, friends from all over the country whipped out their writing instruments and doodled for NF. Some of them you may know like Sugar Ray Leonard. (SEE DOODLE ABOVE LEFT)

Some are friends of my friend, Lou. A big thank you to Lou and all of you who played a big part in this effort to Knock Out NF Once and for all. Take time to see all the doodles on my photo page and go the National NF Doodle Day website!

All doodles will be posted shortly onto ebay where you will be able to bid on your favorite NF doodle!!!

Bid high, soon and often and do your part to help raise money for NF.

Doodlers include Sugar Ray Leonard; designer Andy Dearwater; artist/gallery owner Dan Allison, stamp art artist Kim White; printmaking professor Peter Massing, illustrator Matt Loftiss; America’s Greatest Artists, The Art Guys; writers Lou Congelio and Matt Walsh; Lou’s daughter, Elena Congelio; yours truly, Reggie Bibbs; STANANDLOU’s Kate Wiggins and Rhea Diaz; and my nephew, Jordan Walker.